Simon's casts were taken off earlier than we expected ( 5 days earlier) because he was sleeping so poorly and the doctor did not think the 5 extra days would make a difference. We were so excited! What we didn't expect was that he wouldn't be able to walk at first..... or even very well for several days. The doctor said his knee muscles were deconditioned and it would take "a few days" to strengthen them. This is day 5 and he is still having problems so we aren't sure if he is on track or lagging alittle. He seems to be stronger every day, but he cannot go up or down stairs or do anything that requires he bend his knees to lean down. I will probably be emailing his doctor soon. We haven't been slated to do any physical therapy, so I will ask about that as well, although I have a hard time imagining him cooperating with it.
We are working on getting back into routine - which is NOT EASY! After sleeping with mom for almost 4 weeks - being back in his own bed just isn't very fun. I'm not up to just letting him cry it out in his bed either, as I'm still feeling alittle sorry for him as he is still struggling all day as he gets around and I can see he is in alittle pain. But after 5 more nights of still not sleeping a full night, I found myself bribing him as he went to bed tonight that if he slept all night without crying for me he would go up the reward ladder (a system we have for good behavior) and get the $1 at the top and can go buy gum! Yippee. Lets see if he bites on that one.... probably not. Desperate times calls for desperate measures. ha!
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So what are the plans now that the casts are off? When will he have new xrays?
ReplyDeleteI'm so glad that he's out of the casts..I know that had to have been a rough road with one so young and active!! ((((hugs))))
Hi from Germany,
ReplyDeleteI found your blog by chance.
I have a special needs boy, too.
My son, Fabian, age 10, is wheelchair bound since he fell from a tree two years ago.
It was a very hard time for all of us after Fabians accident. The moment when the doctor told us, that Fabian is paralyzed and the moment when we must told him that he never walk again, was so terrible. Especially terrible was the day, when Fabian got his first wheelchair. I still cry when I saw him sitting in his wheelchair at the first time.
But Fabian is so brave! I am so proud of him.
Since his accident Fabian visits a school for special needs kids. All other kids in his class are disabled, too. The most kids must use a wheelchair, tree kids can walk with a walker / quad canes.
Every Saturday Fabian visits a sport group for children in wheelchairs. Two hours they play together in their wheelchairs. It is so funny for the kids.
Two month ago he got a new “Spidermann”-wheelchair.
If you are interest I will send you some photos of him in his new wheelchair.
I will be glad about a short answer mail.
Best wishes Katja
(Katja.Kretzler@web.de)