Simon started limping a few days ago. He didn't let it slow him down so we weren't worried. We asked him if his let hurt and he said no. Each day he limped more. Yesterday he would only take a few steps and walked on the ball of his right foot and would ask me to carry him - which I did of course! Today, he can barely walk at all and says it hurts. Ack. A week ago, he seemed fine.
We weren't suppose to see his Ortho MD until Sept 1st. I called him up and he's seeing him on Monday August 10th with new xrays. He is on modified rest and motrin around the clock until he shows improvement until Monday.
We are hoping it's all just inflammation. He has been in summer camp the last 8 weeks and today was suppose to be his last day (but he didn't go of course). We spoke with his teacher and they said that he doesn't jump.... (yeah, he finally gets it!) but he runs constantly - including up and down a small hill on the playground. This actually made us feel alittle better. If he over did it the last few weeks, then it could just be inflammed tissue and not a worse scenario of his hip coming out further from the socket. He also says that there is a clicking feeling or sound in his hip. This doesn't seem like it could be a good thing. But again , no way to tell what's really happening under the skin.
It's the terrible waiting game of Perthes. Even waiting until Monday is stressful - wondering what they will say, what the xrays will show. But we are happy we have a responsive doctor willing to get him in immediately - because we know from his nurse he is booked out 2 months.
More updates to come Monday afternoon! Lets keep our fingers crossed....
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Ugh so sorry girl! Praying that he's just overdone things and nothing is progressing!! Sending many ((((hugs)))) from me and Dalton. We see Dalton's ped ortho a week from Monday. I'll check back for an update or shoot me an email once you update the blog so I can check in. Hang in there!!
ReplyDeleteI can share some experience from my son's journey. He was diagnosed around age 6, in May/June. He has never had unbearable pain and his ROM has always been good. Around late fall and early winter of that year, he complained of more pain and seemed to have a lot more stiffness and his limp worsened. When we saw our doctor, we could see on the x-rays that it happened to coincide with when the bone was breaking down a lot more than it had before. I feel that the increased pain/limping was due to the advancing stage of Perthes at the time. The doctor also said that changes in weather can especially be felt by kids with Perthes, so maybe it was the change to winter that also contributed.
ReplyDeleteI am happy to share, though, that my son went off activity restrictions about five months sooner than we anticipated, because there was evidence of bone regrowth. He was diagnosed in May/June 2006 and he was playing hockey in the winter of 2008. He's now 8 and playing baseball too.
He still has some pain when he does a lot of activity (like a full day of hockey camp followed by a baseball game that night) and I occasionally notice a limp. Overall he's doing great. Hang in there, because the end will come and your son will be back to doing all the things other kids his age do!
Best of luck to you,
Karla and William (8)